Over the last few weeks I have had numerous tests and also an MRI brain scan.
My MRI brain scan was to check of my tumour thing has grown back as last time I went to ENT he ordered this but also said that even if it had he would still see me in 6 months time as he would not be doing anything yet anyway which is fair enough but its a long time for me to wait for my results.
I telephoned his secretary last week (and no, it was not the day after my scan LOL) and asked if she could give me my results over the phone and I was told that she could not but she could fax them to my doctor and then I could have them via her.
I had to go for my BP check today and checked if the results had been faxed over and was told they had not. I then had to call the hospital again to ask again if they could fax them as I have to go to see my doctor tomorrow morning about some more blood tests ordered by the hospital (infectious diseases) although I bet this will be wasted appointment because of today the last thing they had on their computer from the hospital is about my having the blood tests (not the results of) that I had by immunology.
I am wanting to view my records soon anyway (I want a few things removing that are ERRORS even down to stating they had performed a previous mastoidectomy on me which is untrue, and also I was told when I had the brain scan I had had "decompression surgery" which I had no idea of (its about taking a piece of skull of to release fluid/blood from the brain but I DID Have the skull taken but I had no idea it was for this reason and I don't think it was. Also things about recurring UTI which again I have never had).
I also am asking my doctor tomorrow if I have kidney disease as some years ago I had a kidney scan (I was under the nephrologist at the time and I asked him because I had BP and was not the build or lifestyle type for BP and I had developed severe anxiety which I had not experienced to this degree before so I had thought I had a condition called addisons disease and he agreed a scan. When the results were back in he told me one of my kidneys was full of nodules and was larger in size and it was no doubt the cause of my BP fluctuations which he was finding difficult to control. He said he was reluctant to do anything because it was working ok and he stated my BP should not go over 130/80 to keep it safe.
Rolling on to this year my BP had risen lots over Christmas and I had a lot to deal with and I told to take another tablet for this BUT I didn't. (I am drug sensitive and I have tried that many bp pills over the years and they messed me up lots and decided to calm down a little instead and try a larger dose of my current meds).
Before this I asked my doctor how this medication would affect my kidney problems and he stated he did not know that I had a kidney problem? He said the hospital had not informed him? Wouldn't that be something that a hospital would have to inform the doctors of because of side effects of medications? I had a kidney that looked like a cloud because the nephrologist drew it for me to show me what mine looked like.
Why don't hospitals and doctors keep in touch? Is there a system now whereby the doctor can link to the hospital records or not? When my daughter had her MRI scan, her doctor got into the hospital records and gave us the results before the hospital did (incidentally the hospital neurology department DID give them over the phone).
What is classed as harmful information also? Does anyone know? I really want my doctors/hospital records putting in order and correcting because half these things I have no idea I have had for some reason and that is why I experience things and put them all down to anxiety/depression myself. I need to know what is physical and what is mental because I then question my own sanity in the end which is not nice and slowly but surely its driving me crazy.
To me this is a huge problem and can you imagine if you had private health insurance or critical illness insurance. I have seen so many cases with the FOS whereby insurers don't pay out because they seem to relate anything and everything back to a previous condition that you had years before you took out your insurance.
What happens if ALL health is privatised and we all have to insure ourselves like America. This is why MISTAKES just cannot happen.
