Results 1 to 8 of 8

Thread: Hospital Results to Doctor - Harmful information?

  1. #1
    Senior Member
    Join Date
    Aug 2013
    Posts
    626

    Hospital Results to Doctor - Harmful information?

    Over the last few weeks I have had numerous tests and also an MRI brain scan.


    My MRI brain scan was to check of my tumour thing has grown back as last time I went to ENT he ordered this but also said that even if it had he would still see me in 6 months time as he would not be doing anything yet anyway which is fair enough but its a long time for me to wait for my results.

    I telephoned his secretary last week (and no, it was not the day after my scan LOL) and asked if she could give me my results over the phone and I was told that she could not but she could fax them to my doctor and then I could have them via her.

    I had to go for my BP check today and checked if the results had been faxed over and was told they had not. I then had to call the hospital again to ask again if they could fax them as I have to go to see my doctor tomorrow morning about some more blood tests ordered by the hospital (infectious diseases) although I bet this will be wasted appointment because of today the last thing they had on their computer from the hospital is about my having the blood tests (not the results of) that I had by immunology.


    I am wanting to view my records soon anyway (I want a few things removing that are ERRORS even down to stating they had performed a previous mastoidectomy on me which is untrue, and also I was told when I had the brain scan I had had "decompression surgery" which I had no idea of (its about taking a piece of skull of to release fluid/blood from the brain but I DID Have the skull taken but I had no idea it was for this reason and I don't think it was. Also things about recurring UTI which again I have never had).

    I also am asking my doctor tomorrow if I have kidney disease as some years ago I had a kidney scan (I was under the nephrologist at the time and I asked him because I had BP and was not the build or lifestyle type for BP and I had developed severe anxiety which I had not experienced to this degree before so I had thought I had a condition called addisons disease and he agreed a scan. When the results were back in he told me one of my kidneys was full of nodules and was larger in size and it was no doubt the cause of my BP fluctuations which he was finding difficult to control. He said he was reluctant to do anything because it was working ok and he stated my BP should not go over 130/80 to keep it safe.

    Rolling on to this year my BP had risen lots over Christmas and I had a lot to deal with and I told to take another tablet for this BUT I didn't. (I am drug sensitive and I have tried that many bp pills over the years and they messed me up lots and decided to calm down a little instead and try a larger dose of my current meds).
    Before this I asked my doctor how this medication would affect my kidney problems and he stated he did not know that I had a kidney problem? He said the hospital had not informed him? Wouldn't that be something that a hospital would have to inform the doctors of because of side effects of medications? I had a kidney that looked like a cloud because the nephrologist drew it for me to show me what mine looked like.

    Why don't hospitals and doctors keep in touch? Is there a system now whereby the doctor can link to the hospital records or not? When my daughter had her MRI scan, her doctor got into the hospital records and gave us the results before the hospital did (incidentally the hospital neurology department DID give them over the phone).

    What is classed as harmful information also? Does anyone know? I really want my doctors/hospital records putting in order and correcting because half these things I have no idea I have had for some reason and that is why I experience things and put them all down to anxiety/depression myself. I need to know what is physical and what is mental because I then question my own sanity in the end which is not nice and slowly but surely its driving me crazy.

    To me this is a huge problem and can you imagine if you had private health insurance or critical illness insurance. I have seen so many cases with the FOS whereby insurers don't pay out because they seem to relate anything and everything back to a previous condition that you had years before you took out your insurance.

    What happens if ALL health is privatised and we all have to insure ourselves like America. This is why MISTAKES just cannot happen.

  2. #2
    Senior Member
    Join Date
    May 2014
    Posts
    637
    Sry for just a short reply but isn't everything about the patient kept on a system called track? All my previous results scans, bloods, medication etc are kept on it and the new CHI number supposed to keep everything in order for the benefit of the patient ?

  3. #3
    Senior Member
    Join Date
    Aug 2013
    Posts
    626
    Thanks for replying blastoff. Its very kind of you.

    Yes, I thought that results were made available to GP's but everytime I ask my GP for results of tests she always says they have not had any through.

    My daughter (under 18) had her MRI scan a few weeks before me and we never had the results through so when she was on her tablet review (topimax) we asked her doctor and he just said that he could access the hospital computer and went online and viewed it there and then. He then told us everything was fine. When we contacted her neurology department about her appointment, the nurse actually looked up her MRI results and relayed them to us over the phone.

    MINE will not for some reason. Its really making me paranoid that I am having information withheld from me because of my anxiety but they fail to realise that a lot of my anxiety over the years had been their doing because of delayed diagnosis and not keeping me informed.

    I just hope tomorrow I can get some of my results. I have my doctors appointment specifically for this. My husband is coming with me. I would be worst paranoid if they kept some information from me as its more harmful to me the other way around. I have to be in control of my illness. Its the not knowing that kills me.

  4. #4
    Senior Member
    Join Date
    May 2014
    Posts
    637
    Things on the track system can get lost I'm aware of, I had bloods taken and my GP didn't know the results but the nurse did...? I'm not sure how the nhs hold medical results but I would push your GP and ask why they haven't shown up on the track system, one other thing it may be the specialist dealing with you or the radiologist has yet to check it and haven't put it on the system. Check back on Monday lunch time they should I would imagine know something by then but guess it's the nhs and there full of suprises 😊

  5. #5
    Senior Member
    Join Date
    Aug 2013
    Posts
    626
    HI again,
    They have been checked by the consultant as I had checked this last week and today I spoke to his secretary who assured me she was faxing them today as I emphasised that my GP appointment was made to discuss the results and other results from infectious diseases and immunology. Its mainly the MRI scan that I would like to know the results of though.

    I know we do have a system at our doctors whereby they can view these things as I have said because my daughter got her this way and the doctor said that he could access them for us so if tomorrow I don't get any answers, I will be frantic as I feel like something is being kept from me naturally. I have gone about it correctly but with my consultant saying that even if the scan showed something up he still would not see before 6 months (although only about 4 months now) I feel its a long time to wait for this when its to check if something has regrown. I can deal with anything if I KNOW. Its more harmful to me not to know something as I imagine all sorts because of my past dealings with the NHS.

  6. #6
    Senior Member
    Join Date
    Aug 2013
    Posts
    626
    Results of scan is good but puter said "no" when she tried to look up my bloods and she said this has never happened before. Oh well at least I know something so my mind is a little easier now.

  7. #7
    Senior Member
    Join Date
    May 2014
    Posts
    637
    Glad to hear Karen 😊

  8. #8
    Senior Member firebird's Avatar
    Join Date
    Nov 2010
    Location
    North Lincolnshire
    Posts
    430
    Good news about your scan. I think the hold up on the blood tests will be the immunology. More complicated than sucking a sample into a machine to analyse.

Similar Threads

  1. Results of ESA - Letter - Q's
    By sea queen in forum Benefits - help & advice on disability benefits, incapacity benefits, ESA and DLA
    Replies: 6
    Last Post: 23-09-14, 13:09
  2. My PIP claim results, but few questions if anyone can help. Thanks
    By andyvecs in forum Benefits - help & advice on disability benefits, incapacity benefits, ESA and DLA
    Replies: 2
    Last Post: 05-09-14, 06:35
  3. Test results and PIP
    By KAREN SV in forum Benefits - help & advice on disability benefits, incapacity benefits, ESA and DLA
    Replies: 18
    Last Post: 04-04-14, 19:55
  4. Went to docs for results and Certificate.
    By jimmyr in forum Benefits - help & advice on disability benefits, incapacity benefits, ESA and DLA
    Replies: 11
    Last Post: 20-04-13, 02:24
  5. 2011 Census results
    By Paul in forum News and general discussion
    Replies: 1
    Last Post: 12-12-12, 15:06

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •