Hi, thanks for taking the time to read this.
My name is Robbie, and for the last 4 years I've suffered from Complex Regional Pain Syndrome. It affects both my feet & ankles, leaving me mostly unable to bear walking. Sitting is a struggle after a short while, and in fact the only relief I get is lying down with my feet elevated. I take 90mg of modified release morphine twice a day, with 30mg morphine as required for breakthrough pain. I'm due to start taking anti-depressants after my next visit to the docs.
I was only finally diagnosed with this toward the end of last year (nov-dec 2013). I had a severe Gout attack in Apr 2010, which led to 'medically unexplained symptoms', until I finally got through to a Doctor in the local Pain Clinic and another Doctor in a rheumatology clinic who told me I had CRPS.
I was working at the DWP in 2010, and lost my job by Sept 2010 due to long-term absence from work caused by ill health.
I have since been on-again-off-again claiming ESA Contributions based and DLA - whenever the planets aligned and I was decreed worthy. I was placed in the WRAG, rather than the Support Group, and my request to be moved was denied.
Most recently I won a tribunal in November 2013 for a claim made in January 2013, which entitled me to 1 years DLA @ higher rate mobility - backdated.
I've put in a new claim for both benefits again, and after hearing nothing from either I called the ESA number. I was told my credits had run out and I was no longer entitled to claim Contribution based ESA ever again, unless I went back to work.
I was under the impression that as long as I was placed into the Support Group, I would in fact be able to claim CB-ESA regardless of my NI contribs.
Can anyone tell me which is the case?
I'm unlikely to ever be employable since I'm pretty much stuck in the house and pain comes and goes as IT pleases, with no regard to a standard working day. To be told that because my wife works we'll never get help again was a big blow today.
Sorry for the long story, and thanks for any info offered.
Robbie