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Thread: I feel disabled,am I ?

  1. #1
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    I feel disabled,am I ?

    Okay, to cut a long story short...it took 15 months for me to get an MRI scan of my neck which confirmed Spinal Stenosis due to a slipped disc at C6-C7...Even though I self diagnosed correctly 12 months before my argued and battled for scan it still took the nhs that time to believe me,or get sick of my pestering...So I got the scan results from my GP ,saw neuro surgeon and he confirmed what i had for some time suspected that i had myelapothy (damage to the spinal cord,i think)and disc was removed 2 weeks ago,fusion ect...All went well.
    Thing is i still have the exact same symptoms as before surgery,
    Heavy arms and legs most of the time,numb top of legs some of the time,numb arms,aching arms went bent,cannot walk properly 80% of the time(as if im slightly drunk),unsteady on my feet all the time,i cannot do the one foot in front of other test without serious balance issues.Numb finger tips and loss of hot and cold sensation,I have to sleep in the afternoons most days as extreme fatigue is common.I have not socialised or worked for 2 years due to this condition.I have found that 1 day a week most weeks i can usually feel near on normal once bathed and out,a walk on flat ground of 2 miles with maybe 5 breaks is possible, but...for a week after i suffer and the next day i have been known on numerous occasions to have to crawl up stairs as legs just wont work properly...I cant clean my vehicle as this has same effect as walking and i suffer for days...The only thing that seems to make me feel reasonabley normal is if i sit and do nothing at all, which is hard for me as i used to be a 13 hour day 7 days a week own buisness type guy before this illness.I have since being correctly diagnosed started to claim benerfits but pip is taking for ever.
    What i need to know is...am i disabled ? what if pip say i can work?, i would love to be able to work but i cant even socialise let alone work.Do employers employ people like me?
    Please help.

  2. #2
    Senior Member mikeydt1's Avatar
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    think you are been way too hard on yourself, with you just having surgery then you at least need to let your body recover for a while or so and then if things are still the same then when you have a follow up inform the surgeon of the problems.

    an example of recovery, i had organ removal and it took at least 8 weeks just for the soreness, pain and everything else to settle down.

    just think you are really pushing things when not allowing your body to recover.

    as for PIP it is not work related benefit like ESA and the best thing is to pop a message in the benefit forum room on here.

    sadly the support for people unlike years ago is been taken away thanks to this nice UK government, so it is now a case of fighting just to get anything.

  3. #3

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    Quote Originally Posted by mikeydt1 View Post
    think you are been way too hard on yourself, with you just having surgery then you at least need to let your body recover for a while or so and then if things are still the same then when you have a follow up inform the surgeon of the problems.

    an example of recovery, i had organ removal and it took at least 8 weeks just for the soreness, pain and everything else to settle down.

    just think you are really pushing things when not allowing your body to recover.

    as for PIP it is not work related benefit like ESA and the best thing is to pop a message in the benefit forum room on here.

    sadly the support for people unlike years ago is been taken away thanks to this nice UK government, so it is now a case of fighting just to get anything.
    well after reading your post it seems you could have been writting about me lol.
    Ihad same op at john ratcliff but think my disc was lower down in neck, took a piece of bone from my leg to replace the disc. also had to wear a coller brace for three month.
    Anyway it did not help me at all and if anything got worse NOT SAYING THAT WILL HAPPEN TO YOU, but i dident have shaking in all four limbs, They call it spastic something or other which i have now.
    Now your walking is about the same as mine and i get high rate mobility also i went to attosers assesment for work and scored 0 points but after tribunal won and placed in support group so, take heart bye the way i cant walk very far at all

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    Thanks for replying guys...loving atossers...i just have to use that from now on,even in there company if ever that happens...I would say"sorry,thats what people call you on-line and i am afraid thats what comes out when i am being put under so much stress " lol...I should have said in my first post that due to my long drawn out diagnosis,and walking symptoms from day 1`ish, that after a total of 17 months from an A&E visit to a much needed do asap op...I now have damage to my spinal cord (myelapothy) and as far as i know the cord cannot repair itself or medical science?...on-line research has made me beleive that if not diagosed within 3 months then permanent nerve damage is likely, so after 17 months i was not expecting much...my surgeon did in a kinda way confirm this by saying the op was mainly going to prevent me getting worse,which makes sence from my on-line research...So, what I have now is very likely to stay,with age i fear it will only get worse,let alone muscles adapting to what i can do ect.
    So...if I do still have all these symptoms (there is a few more) after say 8 weeks...Am I classed as disabled?...To me I am but for some reason I need to be told and know if that is my label...If I know then I feel like there is some help ,somewhere sometimes,if not then its even toughther...To me I am medicaly retired,I am incapable of doing any work and struggle to have any quality of life let alone be able to work...I am single ,37,in debt...used to earning 45k a year as own boss(still get offers of easy money work,but just cannot do),my house is a building site with no money to finish it...all my life savings have gone due to my doctors wrong diagnosis and me thinking work was possible anytime soon as i should recover...so never claimed benerfits and just got lost being ill and spending my savings.

    Sorry to rant but I just want to know what I am now and what I can research,like can I ask for a blue badge thing? ect

  5. #5
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    Hi sorry to hear your troubles one of my probs is cervical which i had op on many years ago and although after a few months the numbness wasn't as bad everything else was and had a few new probs which over the years get worse. Unless criteria as changed you get a blue badge if on high rate mobility dla/pip, blind automatically when you fill out the first part of the form however if you don't have either of these things then you continue to fill the rest of the form that asks about your walking etc some people get blue badge based on what they say and some don't. I was born with problems and got more as an adult i had the word handicap on my birth records, but in reality disabled means you are un able to do things that everyone else can its an individuals choice if they wish to use the term for themselves or not i refused too until i was in my late 20s when things did really start to get difficult to do, but the word back in the 70s and 80s was viewed very differently then than it is now. If you have problems filling out the forms go to your local CAB they usually can help you. Not quite sure how someone on 45k a year gets into debt to be honest but maybe you could see what you could get for your property as it stands and what you could afford to buy once your debts etc are paid off, or maybe go onto the local councils housing list or go bankrupt. I hope you can get the benefit you need which by sound of it is esa and pip goodluck

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    Thanks freedomeagle....but as for..."Not quite sure how someone on 45k a year gets into debt "
    ...I would usually agree but for me its not the picture you proberbly painted,i feel i need to explain ...I had a buisness that was doubling its turn over year on year,5 years ago i earnt from it 15k,the next year 30k and then 45k just before i fell too ill to continue work,and i was working 13 hour days 7 days a week for this...So,in the end 45k lasted me 3 years,thats why i am now skint...Because of my growing buisness i 6 months before the illness took over on advise from accountant bought a new vehicle which costs £250 a month for 4 years, i have just over 1 year left to pay now.With a morgage I have been struggerling for years already,in order not to loose the one thing i have that works and is reliable (my van) and will return some money once paid off and sold, i just have to find that money, i have already sold tools and equipment i know i can no longer use,my kitchen was ready to be fitted after some major buiding work, but i sold my kitchen 6 months ago thinking i will be working soon enough and will soon enough just get another, so now i live in one room upstairs and a microwave on a sideboard is my kitchen...it aint good.I looked into getting a council flat but unfortunately i live in one of the poorest areas of the country and the only choices available to me,well i honestly would rather sleep in a tent in my garden than live amongst the animals,drugs,dirt and asbo world they offer in Burnley, also i am a southerner and the locals just love cockneys,not.My illness cost me my buisness,3 years of hard work and sacrifices all gone, i cant now let it take my home or even reliable transport,public transport is too much of an effort and struggle to get to from my house.Also my house is worth what is owed on the morgage or less,which is coincidently about 45k.
    So i am not so happy, and trying to find help...It would be cheaper for dwp to pay for a new kitchen for me than re-house me,but i need that disabled label to get anything.
    Sorry for blabbing on.Im so all over the place with everything at the moment.

  7. #7
    Senior Member Lighttouch's Avatar
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    Whatsleft, join the club. I've had major neuro surgery twice on my neck and spinal cord back in 1977 and 1981. My first operation happened when I was 19. Luckily for me y job was desk based as a designer. I was able to work continually for the next 38 years as a disabled person.

    I took medical retirement a few years ago as one side of me has so much nerve damage that my writing hand no longer works and my left leg has a dropped foot. I also developed a twisted spine, have no balance but use a crutch to get around. I have been assessed as needing an electric scooter but I still drive an automatic - one handed! A bit tricky when you need to indicate right on a roundabout!

    You want to know if you're classed as a 'disabled person'. Well that's up to you. As far as the DWP are concerned if you can use one finger on one hand then you are fit to work.

    Ironically despite losing the use of my writing hand I was still able to use a computer with various aids and adaptations until my job disappeared due to cut backs - that's when I applied for medical retirement as the only job I could do involved using a computer mouse with my good hand. The trouble is I've wrecked my good hand's nerves through using a crutch to get around and my hand is numb with pins and needles on the finger tips. I do also suffer really bad pain 24 hours a day all year around - even sitting still - there's no escape.

    Luckily I knew I was going to get worse every year so I made a special effort to save, buy a bungalow and pay it off before finishing work.

    What's ironic is the fact I'm not eligible for any means tested benefit due to having savings!

    I think you're in a bad place at the moment and are not sure how to class yourself. You might associate a stigma to being considered a 'disabled person'. But don't. Shit happens - we don't pal for these things.

    The best way of looking at the situation is to say 'your not the problem'. Society is as it doesn't take your disabling needs into account. It's called 'the social model of disability'. You have a right to live in a decent home, access public transport, have a job if you want one after reskilling.

    If you want to be self employed but doing soothing more desk bound then your ew best friend is a government department called 'access to work'.

    Yes you will be entitled to a blue badge I'm sure.

    There isn't anything I don't know about disability issues and ways to access special services.

    I'm going to mark you as a friend on this site as you look like you need answers quickly - happy to help guide you through the quagmire of help on offer that nobody tells you about.

  8. #8
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    I can't really add much more to what Lighttouch has said above, if you need good advice then he is definitely the person to give it.

    All I can say is to do with the definition of having a disability, it doesn't really matter if you have a diagnosis or not as it's what you can and can't do which matters:

    You’re disabled under the Equality Act 2010 if you have a physical or mental impairment that has a ‘substantial’ and ‘long-term’ negative effect on your ability to do normal daily activities.

    • 'substantial’ is more than minor or trivial - eg it takes much longer than it usually would to complete a daily task like getting dressed
    • 'long-term’ means 12 months or more - eg a breathing condition that develops as a result of a lung infection


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  9. #9
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    Just wanted to say whatsleft that that was 1 small remark i made in a reply that contained other stuff that i thought might help you but you didn't seem to take on board. Should point out as far as i know the dwp wont pay for anyone to get a new kitchen or rehouse someone. As for having the disabled label to get anything i can assure you along i should imagine with many others on here that being classed as disabled doesn't automatically get you anything. I now have a nice place but had 15yrs living in areas filled with asbo people and drugs as have a lot of people with health problems only difference is most of us weren't lucky enough to have years of good health beforehand.
    Like i already put I am sorry for what you are going through and most of us on this site have been in similar positions at one time or another. Like I also said you should go to the CAB they probably can help you with the benefit options you have and maybe can tell you about any charities that might be able to help you get something done with your kitchen etc. I am sorry you lost your business and i hope that your health doesn't get any worse and you can find a doc that will try to help you more. I hope you can stay in your house and i can understand why you wouldn't want to give it up, but if you ever do decide to sell up you don't have to apply to just your own council where you live you can apply to councils all over the country its better if you have family or friends in an area you'd like to go too but at least its another option.
    Goodluck and sorry if you found anything i wrote previously or now offensive it wasn't meant that way

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