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Thread: Chronic Pain.... HELP!!

  1. #11
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    Ive had the injections Rhumi told me the 1 I had would suffice, still awaiting Physio.

    Feel like a lost cause but I imagine I am notalone in this feeling. Seems to be a general consensus for us suffering 'Invisible' Conditions. I have always stood by the fact that if I walked into my GP with a hole in my head that he could physically see, I'd be 'fixed' now.

    My shoulders are really causing me so much problems and now depression has taken hold of me, Although feeling better today.

    This damned syndrome is slowly taking away every bit of me. I wanted to go to Uni and train aas a nurse... My 'Fibro' has put paid to that idea. Argh!

    From little things like getting out and about and enjoying an active life (In so many differnt ways) to the big things like being a good mum, and wanting a future for me and my family. My to do list for 2014 was to retrain and get back to work... pah! I think not.

    I left A&E as i knew was a silly idea but was desperate. Had results and as expected all clear (blood tests) Yucky yucky yucky

  2. #12
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    Sending some gentle hugs out to you guys who are suffering too. I get myself so mad, People say 'Coley just get on with it' I hate the fact I am meant to 'get on with it'

    I feel I have a right to live a life that is not limited by this!! Makes me feel sad about my future. I am 28 now..... What lies ahead for me?? Hmmm

  3. #13
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    These ailments respond very well to traditional Chinese deep massage.
    The problem is they are not on NHS and are horrifically expenive.
    This treatments is not for the faint hearted.
    You need the real deal... not someone on work experience, to do it.

  4. #14
    Senior Member mikeydt1's Avatar
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    blackball interesting post regarding use of herbal stuff, for me i have been battling with something for nearly 3 years and to be honest western medicine is really letting me down and stuff i have tried just doesn't seem to address the problem.

    been reading up on a herbal medicine and will be looking at trying some soon, had an email from a friend who told me that the herbal stuff i am getting does take a while to work but at this stage i am willing to try anything.

    did see a consultant once and he actually advised me taking vitamin c!

  5. #15
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    Mikey. There are all kinds of alternative medicine systems. My experience is that the NHS will not intervene until they have to, and you are in the final stage. Always too late. They dole out cheap and nasty painkillers instead of acting quick. I tried a variety of things. Some against advice. Some things I tried were questionable. I will not say try anything...but I did.
    Ayuvedic herbs, Chinese herbs , Japanese Shiatsu, Chinese deep tissue massage (very brutal), Acupuncture.....etc.
    You can experiment to find what suits depending on what your condition is.
    Some more enlightened GP's will advise. The problem is finding reasonable priced and sincere practitioners.

  6. #16
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    I have massage therapy once per week on my back and hips.

    Way back in 2004 (aged 24) I was diagnosed with Fibro and ME, in 2006 the consultants said I have osteoarthritis of the spine and in 2009 I have a genetic condition called KS.
    This last diasgnosis wiped out the initial one as the effects of KS mirror Fibro/ME, I now have HRT injections fortnightly. In 2012 the osteoarthitis was diagnosed in my hips too.

    The trouble is the pain really hasn't got any better since 2004, it's just my outlook on life and the way that I deal with pain has.

    Back then I was unemployed and just about to join the RAF, following a period of depression and a 2 year fight to get DLA I'm now a fully qualified (degree backed) Aeronautical Engineer working as a successful Specialist Engineer for a well known Aerospace company.

    LightTough (and others) are right, mind over matter, if you can learn, is the best treatment along with light exercise. I'm currently also on 90mg patches of Morphine but only as I'm recovering from an op, hopefully reducing this down to more manageable levels.

    I'm still in a hell of a lot of pain though. Good luck!
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  7. #17
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    Quote Originally Posted by ColeyWoley View Post
    Sending some gentle hugs out to you guys who are suffering too. I get myself so mad, People say 'Coley just get on with it' I hate the fact I am meant to 'get on with it'

    I feel I have a right to live a life that is not limited by this!! Makes me feel sad about my future. I am 28 now..... What lies ahead for me?? Hmmm
    A long and happy life if you want it, watching your family grow up. If you can accept that someone who has a limb amputated can still sometimes feel terrible pain in a limb which is no longer there, then you'll be on the road to understanding how the brain can misinterpret nerve signals and turn them into the person feeling pain for no physical reason.

    Yes the pain is genuinely felt by the person but there's no physical problem as such causing it. This is relevant to many types of nerve pain people feel, including Fibro. Another pain with fibro is caused by overly tensed muscles and lack of muscle use which causes the muscle tendons to shorten and contract over time leading to more pain and stiffness in certain muscle points. This is where gently stretching the muscles daily using techniques learned at physio help, and exercise help.

    Feeling depressed and stressed makes you feel the pain more. It's a strange thing. This is why posters are saying it can sometimes be mind over matter. If you concentrate on something else rather than the pain , or distract the brain from interpretaing pain by doing something else , the pain will be less, or disappear.

    Hard to accept maybe, but the body is a strange thing, it has taken millions of years for us to evolve , and it will take thousands more years for science to fully understand how it all works.

  8. #18
    Senior Member andypandy's Avatar
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    I had surgery for my shoulder impingement syndrome last Thursdsy an MRI scan won't be done and isn't needed either.

    I had been suffering about 2.5 years before getting surgery. It's anything from 4-8 month recovery and being in a wheelchair isn't making it any easier either !

    I had a 2 night stay in hospital due to complications, although its normally a day case. It's the recovery that takes the time

    As others have said fibro and ME normally go hand in hand anyway

    Good luck

  9. #19
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    can empathise with chronic pain its a right pain in the everywhere isnt it? hope it starts to lower a bit for everyone the cold doesnt hep a lot of people at this time of year as well

  10. #20
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    [QUOTE=andypandy;51298]I had surgery for my shoulder impingement syndrome last Thursdsy an MRI scan won't be done and isn't needed either.

    hope you taking it easy and recovering as best you can, remember no donuts with your wheelchair if you can even though its funny at the time it can cause pain and extra wear and tear on the other side

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