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Thread: Another new diagnosis..

  1. #11
    Senior Member Lighttouch's Avatar
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    Well floweraglex t's a problem. It's not something you could tell DWP without proof from a clinical professional. I didn't know I had any problems until I had a short stay in hospital when they start monitoring everything. It seems most people pass a 'stool' once a day. I don't - I go once every three or four days - but when I go . . .

    I was asked to attend a bowel movement clinic where you're given drawings of different shapes of stool and have to point to the one tat resembles what comes out of you.

    Basically it's like a potty training clinic - they give you strategies on how and when to try and go.

    The trouble with having this sort of problem combined with inaccessible loos if visiting friends is 'urgency' that's my enemy. I may know that my body is saying you are about to go and I may even be within ten feet of a loo but I sometimes can't undress quickly enough resulting in disaster in the bathroom like yesterday. Luckily my lodger was out so I had time to sort me, clothing and bathroom out before anyone kew.

    It might be advisable to see your doctor and get a referral to a bladder and bowel clinic so that they can confirm your condition - that will have more clout with DWP than just your word.

    I haven't looked into my diet but I try to avoid wholegrain bread as that loosens me up too much.

    Well I'm sure people feel more comforted knowing about my bowel movement in C sharp.

  2. #12
    Senior Member flowerangelx's Avatar
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    I have been referred to a specialist..unfortunately that could take up to 2 months.

    I end up with Diarrhoea a lot of the time, and it can't be stopped unless I don't eat/drink anything, but then I have to eat to take my painkillers, end up being ill and so on.

    If I feel like I need to go to the toilet, I start undoing my jeans on the way(although if I'm in severe pain, it's really difficult as I have to use 2 crutches then) It sounds absolutely disgusting but I have buckets dotted around my house *just* in case. I can't move very quickly so..yeah.

  3. #13
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    Hi flowerangel.

    Have you considered a commode. I know these are sometimes seen as something not very nice etc, but they can be a godsend. I myself used to have one, provided by adult social care in my last place.
    I don't have one at the moment but have been offered and seriously considering it again. I spend a lot of time upstairs so I can be near the bathroom, but I would like to spend more time downstairs with my partner etc.
    I do not get any warning when I "need to go" apart from an acute pain in my abdomen, then it is sometimes too late. I also go to the other extreme where I get acute obstruction of the bowel.
    I really do sympathise with your predicament and hope you are not suffering too much at the moment.
    Sending a hug x
    What lies behind us and what lies before us are tiny matters compared to what lies within us.

  4. #14
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    If you're not eating enough regular solid food but obviously drinking as one has to , then you could make 'the runs' situation much worse and it will be prolonged. Advice given to me by my GP after a prolonged episode of that gastric flu bug a few years ago which affects both ends. lol.

  5. #15
    Senior Member flowerangelx's Avatar
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    Quote Originally Posted by babyblu64 View Post
    Hi flowerangel.

    Have you considered a commode. I know these are sometimes seen as something not very nice etc, but they can be a godsend. I myself used to have one, provided by adult social care in my last place.
    I don't have one at the moment but have been offered and seriously considering it again. I spend a lot of time upstairs so I can be near the bathroom, but I would like to spend more time downstairs with my partner etc.
    I do not get any warning when I "need to go" apart from an acute pain in my abdomen, then it is sometimes too late. I also go to the other extreme where I get acute obstruction of the bowel.
    I really do sympathise with your predicament and hope you are not suffering too much at the moment.
    Sending a hug x
    I did have one after I left hospital because of a knee injury, but felt like I didn't need it anymore(my tummy troubles went for a short while after I cut out milk etc) so asked for it to be picked up. More fool me!

    My tummy is ok today, I'm happy to report...won't last though as I have a very stressful week coming up. :/

    Sending a hug back x

  6. #16
    Senior Member flowerangelx's Avatar
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    Quote Originally Posted by seriouslyfedup View Post
    If you're not eating enough regular solid food but obviously drinking as one has to , then you could make 'the runs' situation much worse and it will be prolonged. Advice given to me by my GP after a prolonged episode of that gastric flu bug a few years ago which affects both ends. lol.
    I try to eat solid food but it makes me really ill after..I can't win!

  7. #17
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    Quote Originally Posted by flowerangelx View Post
    I try to eat solid food but it makes me really ill after..I can't win!

    Know what you mean. As a Type 1 diabetic on umpteeen insulin injections, I have to eat no matter what. With the gastric flu bug, I'd eat, throw up then have to eat again straight after to avoid low blood sugars and insulin comas. It's not easy but it was only for a short time and solved the run problems for me.

  8. #18
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    IBS can be a reason for having ESA on it's own, and I have seen a few people who have very bad IBS , if you wet your self, mess your self because you have to stay in and cannot go out staying close to the toilet is how I ended up getting ESA.

    I also have other issues but it's my problem with my IBS which ended up being the clincher and I was given the benefits for being unable to deal with my bowel bladder problems. I wear a pad, this only works sometimes other times they fail to work.

    My own feeling is that you should be able to make a claim on this on it's own, but you really do need to speak to your GP because it's his medical evidence which will clinch it for you.

    And of course any pressure any changes and thing which causes a nervous reaction will set off IBS.

  9. #19
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    I have Crohns,Colitis and IBS I developed agoraphobia through my conditions as I have very little warning when I need the loo and virtually no control. Apart from doctors and hospital appointments which I often miss I hardly ever go out. I too have knee and back problems caused by Crohns so cannot move quickly I have to spend days upstairs during flares. When I need to go out I get very unwell and stressed resulting in an urgent need for the loo so it's a vicious circle.
    For the above conditions I was placed in the support group for 3 years.
    Last edited by gus; 28-08-13 at 15:05.

  10. #20
    Senior Member mikeydt1's Avatar
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    in the 90's i was told i had I.B.S, how far was this diagnoses wrong! i was also at the time having trouble with bowel and bladder issues which overtime became worse.

    it was found at a later stage that i had gall bladder disease which was causing most of my symptoms and for the incontinence i found out after many tests that my bladder had enlarged to the size of a 2 pint kettle now using a catheter which i have had for a long time.

    if you are getting incontinence problems then there are many causes and it is all ways best to get it checked out as there are lots of things they can now do.

    not sure about the wetting for I.B.S but def bowel problems. if you are getting wetting as well then as mentioned do please get it checked out.

    from my understanding, if they have exhausted all tests and can find no causes then they will diagnose I.B.S, in my case they missed a couple of vital things and the main one was an ultrasound of the right abdomen which would of shown the problem with stones and also failed to do an internal examination of the bladder. thankfully these were done but only when it was too late to do anything.

    if you are told it is I.B.S and think something is still adrift then do stick to your guns, i did and this saved my life!

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