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Thread: multiple epiphyseal dysplasia support group

  1. #1
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    multiple epiphyseal dysplasia support group

    Hi All, I run a support group for people affected by MED their carers/family.Over 70,000 people in the world are now living with MED (multiple epiphyseal dysplasia), that equates to 1 in 10,000
    www.facebook.com/groups/med.support.
    This is a closed group to protect privacy. Membership is by request approval by admin.
    MED badges will be available in the coming weeks @ £2 plus p+p
    Hi All
    The badges and backing cards have arrived finally.
    The badges are £2 each
    Postage + Package
    UK: £1
    EUROPE: £3.10
    USA: £3.60
    CANADA: £3.60
    AUSTRALIA: £3.60
    Payment is via PayPal to:
    wigan_red@yahoo.co.uk
    Please state in Info box the following details:
    Full Name
    Full POSTAL ADDRESS inc Postcode/ZipCode
    Alternative Payments:
    CHEQUE
    POSTAL ORDER
    Please contact me if you wish to use these methods
    Attached Images
    Last edited by wiganred; 18-05-13 at 06:20.

  2. #2
    Member kafouser's Avatar
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    Tried to get in to find out exactly what the condition was. It's a locked group!!

  3. #3
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    Hi it was locked to allow people privacy, if you wish to join please ask. If you just want to find out what MED is Goggle it would be easier

  4. #4
    Member kafouser's Avatar
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    Did that. Loads of fascinating technical stuff, but not a lot on how it actually affects your daily life. Thought that people might be interested in those aspects of the problem.

  5. #5
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    Hi, if your interested on how it affects people in their daily lifes I suggest try asking a random selection of them to get a broad spectrum of answers

  6. #6
    Dturn0ap
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    Hi, My name is Dixie Turner and I have multiple epiphyseal dysplasia and I would like to join this group.

  7. #7
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    Quote Originally Posted by Dturn0ap View Post
    Hi, My name is Dixie Turner and I have multiple epiphyseal dysplasia and I would like to join this group.
    Hi if you wish to join the link is : www.facebook.com/groups/med.support .I'll add you from there..thanks

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