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Thread: Help r.e. upper tier of Mobility PIP for Motability qualification

  1. #1
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    Help r.e. upper tier of Mobility PIP for Motability qualification

    Hello and sorry in advance for the long post but I wanted to get everything down. I am looking for any help or advice regarding mental disability and the Mobility element of the PIP.

    I suffer from some complex psychological issues which are as yet undiagnosed (which is a huge disadvantage as the benefit reviewers seem to want titles!) but which I am attending a specialist clinic for. I have however been diagnosed with OCD, autism, social anxiety and depression.

    I currently receive PIP (the upper limit for “daily living” and lower limit for “moving around”). I also receive benefit for unemployment. My parents receive carer’s allowance.

    My situation is: I have no job or any friends or social life, and if I am not in my car or visiting somewhere with my parents with me then I will be in my bedroom. Other than my parents, I depend entirely on my car to have anything resembling a life as I am otherwise stuck in the bedroom for 24 hours a day.

    I go out daily in my car as this is the only way I am able to escape from my bedroom (I cannot use the rest of the house for the aforementioned issues). If one of my parents is not able to be with me so I can get out somewhere, I will go alone and park up at a scenic spot and just sit there in the car for a while, as this is literally my only chance to get out of the house. If I don’t get out each day I feel I would become insane, there have been times I have been stuck in my room for days and I experience panic attacks, and end up resorting to self harm or alcohol.

    A recent development is I have started attending a specialist clinic which is a 150 mile round trip. I go once or twice a week so my mileage has increased significantly.

    Public transport, taxis, etc are an impossibility at this time. Also, I am not able to ride as passenger in a kind family member’s car due to the OCD.

    I can’t emphasise enough how important my vehicle is for me. It is really the only thing I have in my life. It is my only way of leaving the house (or even my bedroom), my only access to hospital, but most importantly it keeps me sane!

    It has to be stated that physically I have no issues walking. If it were not for the psychological issues I would be able to walk normally. I can do several laps of my 12 foot bedroom if that is of any relevance!! However the way things are, the furthest meaningful journey I am able to walk unaccompanied is the 50 yards from the front door to my car (I find this still distressing) and I am unable to get out of the car at the other end of the journey unless one of my parents is with me.

    The issue here is that the car is becoming too expensive. I keep finding ways to fund it, even when I can’t really afford to, but the added necessary 150 mile trips I fear is going to push it over the edge. I currently spend about 80% of my income on the car the other 20% is sufficient for rent and living expenses as I am fortunate enough to be living with my parents. The vehicle is not a flash or expensive one, it is a 2005 Mini with 150,000 miles, maintained by an independent garage, not an expensive main dealer. I can’t afford the lump sum to change the vehicle for something cheaper to run.

    Last year I asked for the PIP to be reviewed. To be awarded the higher tier for “moving around” 12 points is required and I was awarded 11 which I can’t help but feel suspicious about.

    A friend of the family recently has passed their driving test and has been awarded the upper rate and a Motability car due to autism and epilepsy (under control with no “episodes” for several years now). They are able to manage these issues well and are able to have a life and socialise and go to college but according to the PIP reviewers I am seemingly in a better position despite being unable to do any of this! Therefore I do not qualify for the Motability assistance. In reality, I can’t help but wish I could trade my situation for a 5-yearly epileptic fit!

    I would really appreciate any advice you are able to give, optimistic or otherwise. From the above example it seems there is some hope I could push for that extra 1 point as it appears, similarly to myself, that this person does not have physical walking difficulties. I suspect they must have used the “absolute worst case scenario plus a bit worse” technique that some advise when filling out the forms. I can’t work out whether this the correct thing to do or whether this is morally or even legally correct. I filled out the forms honestly but selectively to highlight the areas of life I struggle in as opposed to the ones where I don’t.

    It would help monumentally if I was to be awarded with the required PIP to swap for a Motability car especially as given my situation the motor insurance accounts for a lot of the expense. This is not to mention the fuel savings of a modern car: due to my increased mileage currently around £3000 a year goes on fuel; a modern small car would reduce this to £2000. I have worked out my motoring costs (fuel plus the £250 a month forfeit) would amount to just over half my income compared to the current 80%. These savings I could use to improve quality of life, deal with my issues, pay for activities that form part of my CBT, take on distance learning courses and hopefully break the cycle of not improving and hopefully come off of benefits. Right now I am just stagnating.

    Apologies for the long post!

    Thanks in advance

  2. #2
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    Unfortunately, it would appear there are no grounds for you to contest the award as the criteria for mental health issues for PIP mobility are about the ability to navigate and whether you need to be accompanied. As you go out alone in your car there is no reason for you to be awarded the higher level of points for that. The question about how far you can walk is entirely about physical health so doesn't apply.

  3. #3
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    Thanks for the reply.

    So sadly it sounds like there is still discrimination to some disabilities.

    It should be noted the family friend I mentioned has autism like myself and also not been bothered by their epilepsy for over 5 years. They go out in their Motability car by themselves to attend college, have an apprenticeship and visit their friends.

    Are you able to shed some light on how they managed to convince the DWP they are immobile? Would you say it is likely they acted dishonestly?

    I can’t believe I am in a better position than this person.


    Sorry not aimed at you just I do not see how this is fair. Right now I will be stagnating and probably claiming benefits for the rest of my life as a result of issues that with some work could be slowly dealt with if I had the available funds.


    Thanks

  4. #4
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    Also I would note when I do not have a parent with me I will only drive to familiar local places. I don’t have the confidence to drive in an unfamiliar area without someone present.

    Just thinking out loud (well on paper) here for the worst case scenario:

    The worst case scenario is not having someone to accompany me, OCD flaring up, people outside so I can’t go outside, i.e. I would not be able to get from my bedroom to the car as too many barriers were present. Therefore I would not be able to go out at all.

    Is it fair to state this as my daily situation? - I have been reading online that some people take the worst possible day they could have, if every dice is rolled against you on that day so to speak, and state that as their daily situation.


    I honestly can state that if I was wheel chair bound but had none of my psychological issues I would be less of a prisoner than I am at the moment. I could go to college, maybe even get a job, at the moment I can’t do anything. If I lose my car I really would be a prisoner as I would never be able to leave my room. I really don’t see how this is fair :-(

    Sorry about the whinging just trying to get my thoughts down
    Last edited by Slowdriver; 30-08-18 at 12:54.

  5. #5
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    There's no reason to assume this person is dishonest. Everyone's situation is different and even with the same diagnosis, there can be different effects for different people.

    To state your worst possible day, imagining every bad thing that could happen all occurring at once, is how you are every day would be dishonest. Getting 12 points for mobility on mental health alone is virtually impossible and really only applies to people who are totally housebound. The majority of people with mental health issues will only score 4 points for "needs prompting" if they need someone with them at all times. Some score enough for the lower mobility component, but as I said, getting 12 points for higher mobility is only possible for a few on mental health criteria, for most they also need to have some physical disability too.

  6. #6
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    Thanks again noisynoodle

    From what you say re being housebound. What may have to happen is I will have to accept losing the car for a time - of which I will be totally housebound. Then I would qualify for the upper limit?

    Thanks

  7. #7
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    Well by deliberately getting rid of your car you would be dishonestly claiming you can't go out as you actually can. You would need strong medical evidence to prove you are completely unable to go out at all and they would question that, expecting evidence that you have home visits from your doctor, therapist, optiicians etc., etc..

  8. #8
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    A few questions for you.

    I do not understand how you were awarded 11 points for the mobility section. Are you sure as the points cannot add up to 11!

    Next, after your review for PIP did you go to tribunal?

    Do you claim the 50% reduction on your road tax because you receive standard mobility of PIP?

    https://www.gov.uk/financial-help-di...-and-transport

    Have you applied for help with travel costs for your trips to the specialist clinic?

    https://www.nhs.uk/using-the-nhs/hel...s-scheme-htcs/
    Last edited by pmlindyloo; 30-08-18 at 13:32.
    I try my best

  9. #9
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    Noisynoodle - as said in my original post the car is not going to be affordable which is why I am facing losing it. I am not deliberately getting rid of it when I can still afford it.

    Appreciate the info given but the tone is really not pleasant. Right now I am a prisoner in my room for 23 hours a day. The one hour I can go out I can’t even leave my car unless someone is there to accompany me. Yet you keep trying to assert that I am perfectly functional when every day I hear of people in wheel chairs who have more freedom than me. The public needs to be educated about invisible disabilities.

    Pmlindyloo - yes I am claiming the tax reduction. I didn’t know about that scheme. I will look into that - that would be incredibly helpful as it is the new journeys that are going to make my car unaffordable. Really appreciate that!

  10. #10
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    Ps not sure, may have got the points wrong - just remember being one point short of whatever it needed to be?

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