Hi
Posted once before, and know everyone here is struggling with the dwp etc, and that my situation is very complex and may be offputting. To the person who replied before, I'm thankful. I wouldn't take time up unless I was absolutely desperate, so would just request if anyone has any ideas to just briefly let me know. I will try to summarise as best I can.
Physical ill health (back/hips) got very bad after 10 years (very low paid) heavy carework plus car crash caused me to limp. Extreme pain now; meds not touching it, crutches. Had to withdraw in 2002. Traumatic past re x-family; pillar to post, tried best to find work and cope. 2006 seemingly mind collapsed; thought was being haunted. Horrific 5-senses r@pe/torture/abuse that got worse and worse. Very wary of the system, after all carework, as know there can be some v nasty people there, but by the end of 2013, was just too bad. Dreadful time since, abuse by mental health system eg assessed with ddnos (I feel it's DID, tbh) and unstable personality. Promised long term psychotherapy and referred on; place not good, and, when to first 'therapy' appointment, dropped EMDR on me, which is entirely unsafe for someone like me [no support system, very active episodes going on]. Therapist abusive; too fast, and used diagnosis against me when I said I didn't have time to think or answer properly, then she went into graphic rape description, continuing when she saw me cry. At 2nd appointment (recorded it, as terrified of no backup), questioned why emdr and abusive, what about safety etc. Kept calm, but she threatened to write that me uncooperative; I had no option but to withdraw, as clearly unsafe, and make complaint. Complaint system just as corrupt (pals and ombudsman). 16 months trying to get answers; only points upheld were what the recording showed, that her v much about her agenda, not listening, etc. End result; nothing, except I should self-refer via GP, to a different team. Too damaged. Along with all this, bad gp ... most of medical records missing before 2013 (when to this gp), and no birth town noted and wrong ethnicity, and someone else's entry in my records. GP unpleasant as I requested 2nd diagnosis, as his psychiatrist close friend had been v unpleasant to me and misdiagnosed. This GP went on to say I should sort myself, and also has misrepresented me to the dwp, and stuck with that, despite me challenge him, with an advocate there in the room too. He put 'chronic mental health, no medication'. Nothing about v bad physical health and why no meds for mental health (111 called ambulance as me in such pain). At last managed to register at a new gp, who so far v nice about simple things, but have been too nervous to speak with about all this, although know I must.
Advocate place made appt for me with local welfare rights person. He says I must go to gp and tell. Desperately need more painkillers too. Welfare rights man concerned about no evidence. I am on Support ESA, and was on DLA for years. Have copy of dwp letter from 2013, where they state I can hardly walk etc, yet pip wca this time gave me 2 points, about communication, because I was too distressed at one point and advocate had to speak up. They entirely ignored mental health, and that I was wearing arthritis mitts, using a stick, clearly in pain, and said about suicidal/can't cope. Clearly not qualified. They pretended to care too, expressing concern that my back was clearly sore during brief examination, and pretending to respect that I didn't want to be touched.
Life is over if, due to no recent medical evidence, the abusive mental health/complaints/general system wins, leaving me with no way to go out at all ... I couldn't afford taxi to gp or to any therapy, if that was ever possible, or about meds that help me but that I can't have on prescription, or manage to pay for home help or help showering, which I'm feeling I need soon. Am 50, just, but don't know how to cope. The irony is that I have qualifications, worked well in the past, cared, have good art qualifications, and did have plans eg artist and art therapy, but, due to nobody there to help with mental or physical help, and now alone since 2002, entirely, I just am stunned. Treated as on the rubbish heap. They clearly want people to kill themselves, and want to remove any hope or resources, not caring whether it's a slow death that way, or a quick death due to overwhelm.
They witheld any DLA evidence held on me, yet sent IB/ESA. Welfare rights advisor has said to write back and say I am entitled to see the information on me, according to Data Protection Act the dwp wrongly quoted as the reason. I have evidence up to 2013, but nothing really since then, due to abuse by gp/mental health system/complaints system etc. Was on high rate mobility, low rate care, re DLA, and surely being in Support group ESA is something; yet they've still given me zero points except the 2 for communication. Had no x-rays for about 14 years, despite asking.
Surely the bottom line cannot be that someone too ill to go out/cope, mentally and physically, and who's been clearly abused by the system, can't be written off and basically imprisoned at home to die, because of lack of recent evidence? Surely they would see I'm bound to have got worse in the last 3 years, and had solid evidence before?
I'm sorry I can't summarise better. Very hard to ask for ideas about evidence without detailing circumstances. I don't really like posting; very dissociated, but don't know what else to do but post where others are dealing with the same vile system and surely have some ideas. I would be very grateful. Thank you.
Reply With Quote
Originally Posted by KAREN SV
