Results 1 to 9 of 9

Thread: Scared to death of PIP medical / What should I expect?

  1. #1

    Scared to death of PIP medical / What should I expect?

    Hi,

    I hope someone here can help me. I am a 53 year-old female from Bradford in West Yorkshire.

    I originally had an appointment for my PIP assessment on 8 June 2015, but thanks to the Royal Mail, I did not receive the letter. I received a letter from the DWP yesterday saying that I did not attend, so I called them straight away and explained what happened. They told me just to complete the accompanying form, saying that I did not receive the original letter. I posted this right after I spoke to the DWP.

    I am petrified of this assessment. I've been researching it online, and I'm reading all kinds of horror stories.

    I suffer from multiple conditions. I first went on DLA because I have bipolar disorder that was first diagnosed in 2008. I had one suicide attempt due to a phone conversation with an extremely rude woman at the TV Licencing agency. I rely on my DLA and ESA to basically survive, and that's really hard.

    In addition to BPD, I now suffer from these conditions:


    brittle asthma -- required two inhalers
    bronchiectasis
    rheumatoid arthritis
    severe osteoarthritis in multiple joints, especially in my knees, hands, wrists, shoulders, back, hips
    scoliosis
    severe pelvic shearing from multiple falls
    polymyalgia rheumatica
    require hearing aids
    motility disorder of my GI tract that has to be controlled with loperamide or else I have chronic diarrhoea
    severe anxiety
    angina
    gout
    high blood pressure
    high cholesterol
    GERD
    carpel tunnel syndrome (bilateral, operated on, but getting symptoms again. Have already have a steroid injection for this)
    incontinence issues but controlled by avoiding certain drinks
    Dercum's disease


    I can drive, but it is extremely painful, and I find getting into and out of my car is extremely difficult. I have to literally glue my arms to my side to avoid moving my arms to try to lessen the pain. I also can take public transport, but I need the assistance of the taxi driver or conductor to get in and out. My sleep is very poor due to both the extensive pain I have and when I am manic with my rapid cycling BPD. This is controlled by several medications, otherwise, I would be fully-blown manic. My finances are also in taters because I was unable to monitor my incomings and outgoings while manic or depressed.

    I'm also not working, having been made redundant at my last job. While there, the company provided me with an occupational therapist for my BPD and made arrangements for parking my car in a space very near my office's rear door.

    I find it extremely difficult to dress because I cannot lift my arms due to severe pain in my shoulders and deltoid muscles. When I lay down to go to sleep, they feel as though someone is hitting them with a hammer, the pain is that bad. Any bras are met with horrible pain. As a result, dressing takes forever, or if I know I don't have to be at any hospital or doctor appointments, I will sleep in my clothes.

    All of this brings me to tears on a daily basis. My grip has gotten poor, and I find myself dropping things. I used to design jewellery, but because of my grip, I no longer do this because I keep dropping things. My rheumatologist tells me that I should expect total knee replacements on both knees because they are in that bad of shape.

    My bedroom and bathroom are upstairs, so I climb the stairs one foot at a time. I've already had toilet accidents during a stomach bug because I couldn't make it upstairs in time or walk from the bedroom to the toilet.

    Using the toilet is tricky because I do not have any aids in place. Because the toilet is right next to the door, I use the door frame to set myself down and lift myself up. Showering and bathing is also difficult. If bathing, I have to roll myself around in order to get up, so my head is practically sitting on the bottom of the bathtub. I have a chair set outside the tub so I have something to grip, including for getting in and out of the tub for a shower.

    As a result, I only take a shower or bath if I know I HAVE to out to an appointment so I don't look like a right tramp.

    I've been reading all kinds of horror stories about Atos, how they have cameras all around, double-sided mirrors. how the exam is performs.

    I don't know what to expect, and to be honest, I am severely stressed, anxious, and sick to my stomach, and I don't even have the appointment yet. I hear that the HP tells you to get undressed. Is this true? This sends me to new heights of severe anxiety as I was molested and abused by an ex as well as two co-workers (this when I was younger). And what about eye contact? Do you need to bring all of your medications with you? Mine take up a large Lloyd's bag. I take 26 tablets every single day, including Methotrexate once a day.

    I'm a terrible mess. Can any of you help me? Please?

    Many thanks,

    Lee
    Last edited by leeappleyard61; 21-06-15 at 18:41.

  2. #2
    I have never heard of them asking anyone to get fully undressed, so try not to worry about that. As for medication, as part of any evidence you submit, you should have a letter from your GP listing your conditions and medication. You do not physically have to produce the drugs.

    I too stressed about the PIP consultation, but it was not at all bad. My best advice is prepare in advance, read the key descriptors and relate your conditions to these descriptors, (i.e. how they affect the relevant tasks). Take someone with you, this both helps with support and they are more likely to mark against you on certain descriptors if you try to brave it alone.

  3. #3
    Senior Member beau's Avatar
    Join Date
    Nov 2010
    Posts
    2,973
    PIP is not about your diagnosis but how you are affected mobility and care wise. As for getting undressed for the HCP I have never heard of that. If you look around the forum you will find reports of what the face to face consists of.

  4. #4
    Senior Member
    Join Date
    Oct 2014
    Posts
    761
    As hard as it is to relax with anxiety, the assessment itself should be relatively relaxing. Possibly a few tough questions thrown in. They can't ask you to fully undress, and must be able to justify any requests. They may want to examine joints such as ankles and knees.

    My pip assessment is in 3 days so your not the only one panicking about it. Do the best you can in the assessment. Try to forget about the outcome until you receive that brown envelope.

  5. #5
    New Member
    Join Date
    Jun 2015
    Posts
    6
    My pip assessment was helped by having someone who knew my condition who sat in on my home visit, this can be anyone family member a friend or a community nurse. The assessor will ask for proof of your identity before they start to go through your health or mental history, if you have recent Dr's or specialist letters ask the assessor to look at them but they don't always look at your evidence?

    Then they will go through each descriptor that you have ticked on your recent pip form and then you will need to explain how this effects your daily activities and if you will score any points for each one, but you don't get showed what the assessor types in i know many people would like to know whats been written before hand, you might get a friendly assessor or have one like mine who was abit standoffish? At the moment they are not providing recordings at these pip assessments but i would try and do a recording maybe do one on your phone. .
    Last edited by MikeT; 21-06-15 at 12:38.

  6. #6
    Hi all,

    Thank you ever so much for your replies. I'm in such a state, I'm to the point that I'm vomiting and not sleeping, despite taking my medications, enough of which are generally enough to knock out an elephant (that's a minimum of 26 tablets a day).

    I have contacted MIND and asked them about obtaining an advocate. I really don't have family or friends who I can rely on to help me through this.

    I'm freaking out so badly it's not even funny. I read about how the assessment centres have cameras all over the place, even for when you are dropped off. I'm finding it extremely hard to take public transport anymore. I had a hospital appointment last week, and I nearly fell out of the bus, train and taxi because of my knees and hand grip.

    I'm getting a lot of recommendations about having a home visit. I have an elderly dog and two cats. I have all of their food at waist level and use knives to open any cans....they have to be flip tab type tins. My nearly 13-year-old girl just goes out back because she's arthritic. Cleaning up after them used to take minutes, now it takes like an hour to do it properly. If I end up on the floor for any reason, it takes me ages to get up. I have to crawl to somewhere where I can try and grip -- and that's poor -- then pull myself up. The pain in my back and knees is excruciating. I've already burned myself in several places when I lost my balance and hit a hot radiator.

    My home looks like a pig sty. I used to be able to clean all three floors in a few hours on a Saturday. Now, vacuuming the living room takes me like 45 minutes and leaves me out of breath.

    I was told today by someone that the provider can also offer a telephone assessment? Have any of you heard of this? I was also told to email Atos and the DWP with all of my concerns. If I did that, would they view that as my ability to type and use a computer??

    Something that also concerns me is that my conditions have worsened since I made my initial application. What do I do is this instance?

    Also, with regards to the recordings: what kind of device do I need to look for or do they use their own? I'm having a hard time finding something that records two cassettes at a time.

    I'm just such a wreck. If I could cash out of this khaki coil I would in a heartbeat.

    Lee xx

  7. #7
    New Member
    Join Date
    Jun 2015
    Posts
    6
    Hi Lee

    Try not to get so worked up about the assessment if you feel you not able to attend you can cancel the first appointment, also if you have difficulties going out like myself my GP wrote me a letter explaining my anxiety symptoms and why i find social engagement difficult and could i have a home visit instead, the pip assessor might prefer a home visit to see how well you cope at home if this is much easier for you

    Recording assessments need to be done with the agreement of the assessor and i used a cheap Dictaphone but of course some assessors might not like this done? it will be up to you to record the assessment if you wish
    Last edited by MikeT; 21-06-15 at 16:05.

  8. #8
    Senior Member
    Join Date
    Dec 2014
    Posts
    1,681
    Please telephone adult social services and ask for an adult assessment.

    They will provide you with some aids to make your life easier. There are all kinds of things to help you bathe, go to the toilet more easily.

    Do it first thing tomorrow morning.

  9. #9
    Quote Originally Posted by carl30 View Post
    As hard as it is to relax with anxiety, the assessment itself should be relatively relaxing. Possibly a few tough questions thrown in. They can't ask you to fully undress, and must be able to justify any requests. They may want to examine joints such as ankles and knees.

    My pip assessment is in 3 days so your not the only one panicking about it. Do the best you can in the assessment. Try to forget about the outcome until you receive that brown envelope.
    How did you get on, Carl? Was wondering how you were doing.

    Lee

Similar Threads

  1. Payment after death ???
    By smokie899 in forum Benefits - help & advice on disability benefits, incapacity benefits, ESA and DLA
    Replies: 5
    Last Post: 26-09-14, 19:28
  2. DLA - Right Payment program interview/medical what can I expect?
    By mike 2 in forum Benefits - help & advice on disability benefits, incapacity benefits, ESA and DLA
    Replies: 1
    Last Post: 28-04-13, 11:05

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •